House Resolution 1052
By: Representatives Cooper of the 45th, Fleming of the 114th, Panitch of the 51st, and Reeves
of the 99th
A RESOLUTION
Expressing support for the designation of a State Prader-Willi Syndrome Awareness Day to
raise awareness of and promote research on the disorder; and for other purposes.
WHEREAS, occurring in approximately 1 out of every 15,000 births, Prader-Willi syndrome
is a complex genetic disorder that causes an extreme and insatiable appetite, which often
results in morbid obesity; and
WHEREAS, morbid obesity is the major cause of death for individuals with Prader-Willi
syndrome; and
WHEREAS, Prader-Willi syndrome is the most commonly known genetic cause of
life-threatening obesity, affecting males and females with equal frequency across all races
and ethnicities; and
WHEREAS, Prader-Willi syndrome further causes cognitive and learning disabilities as well
as behavioral difficulties, including obsessive compulsive disorder and difficulty controlling
emotions, and studies have shown that individuals with the syndrome have a high morbidity
and mortality rate; and
WHEREAS, the hunger, metabolic, and behavioral characteristics of Prader-Willi syndrome
force affected individuals to require constant and lifelong supervision in a controlled
environment; and
WHEREAS, although there is no known cure for Prader-Willi syndrome, early diagnosis
allows families to access treatment, intervention services, and support from health
professionals, advocacy organizations, and other families who are dealing with the
syndrome; and
WHEREAS, recently discovered treatments, including the use of human growth hormone,
are improving the quality of life for individuals with the syndrome and offer new hope to
families, but many difficult symptoms associated with Prader-Willi syndrome remain
untreated.
NOW, THEREFORE, BE IT RESOLVED BY THE HOUSE OF REPRESENTATIVES that
the members of this body express their support for the designation of a State Prader-Willi
Syndrome Awareness Day in recognition of the efforts of the many advocates and
organizations that encourage awareness, promote research, and provide education, support,
and hope to those impacted by Prader-Willi syndrome.
BE IT FURTHER RESOLVED that the Clerk of the House of Representatives is authorized
and directed to make appropriate copies of this resolution available for distribution to the
public and the press.