Georgia CommonsHR 546: Myositis Awareness Month; May 2025; recognize
Versión Introduced, la más reciente que tiene LegiScan · Última acción: 6 de marzo de 2025 · Passed
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House Resolution 546
By: Representatives Hilton of the 48th, Cooper of the 45th, Hawkins of the 27th, Mathiak of the 82nd, O’Steen of the 169th, and others
A RESOLUTION
Recognizing May 2025 as Myositis Awareness Month; and for other purposes.
WHEREAS, residents of Georgia are among those affected by myositis and other rare diseases, as nearly one in ten Americans have a rare disease; and
WHEREAS, idiopathic inflammatory myopathies, collectively referred to as myositis, are rare, chronic, autoimmune muscle-wasting diseases that often feature debilitating muscle inflammation, pain, fatigue, and difficulty swallowing and can result in myositis-associated interstitial lung disease; and
WHEREAS, more research is needed to identify the causes of and treatments for myositis, which includes anti-MDA5 autoantibody-positive myositis, antisynthetase syndrome, dermatomyositis, juvenile dermatomyositis, immune-mediated necrotizing myopathy, inclusion body myositis, and polymyositis; and
WHEREAS, myositis is difficult to diagnose, often leading to delayed treatment, and individuals with the disease frequently struggle to find healthcare providers with expertise in their condition; and
WHEREAS, all who suffer from myositis experience a reduced quality of life, and no cure has been found; life expectancy is often shortened, particularly for those with inclusion body myositis, and women and people of color with all forms of myositis experience pronounced health disparities; and
WHEREAS, the Myositis Association is the leading international patient advocacy organization serving the myositis community, focusing on patient services, education, research, and public awareness in the pursuit of a world without myositis.
NOW, THEREFORE, BE IT RESOLVED BY THE HOUSE OF REPRESENTATIVES that the members of this body recognize May 2025 as Myositis Awareness Month. BE IT FURTHER RESOLVED that the Clerk of the House of Representatives is authorized and directed to make appropriate copies of this resolution available for distribution to the public and the press.